Brayden's Journey

Wednesday, November 30, 2011

3rd Laser surgery....DONE!

Today Brayden had his 3rd laser treatment surgery at the Phoenix Childerns' Hospital we had to check in at 6:30 am. He couldn't have anything to drink after 6 am.....so he did pretty good this morning and was full of smiles and while he played in the play area while waiting for Dr. Price, he even crawled around the nurse station and flirted with the nurses ;)

Finally at 8:45 they took Brayden back and when we handed him off to the nurse he was full of smiles and didn't care that he was leaving us.  What a strong little boy! Surgery only took less then 45 minutes and then it was time to see Brayden in recovery.  When he woke up he didn't cry much and he normally drinks 8 oz. right away but he was extra sleepy and only drank half a glass of apple juice. 

When Dr. Price came back to talk to us, she said that everything went great and they she upped the dosage of the laser and that he already has some blistering and that she would put him on a steroid for 5 days to help with the swelling.  And if he seems like he's in pain we can give him pain meds, but Brayden is usually fine and doesn't need them. 

I told Dr. Price that Brayden would be going to Chicago for surgery on Feb 2nd, so she said that we would wait till May to do his next laser surgery.....he should need around 3 more rounds of laser.  We can already tell the difference and it looks lighter then it originally did.  Now since the laser was done today, the pigments in the satellite spots are super dark and they will start to scab over the next few weeks.  Then they will start to lighten. We have to keep him out of the sun for the next few weeks and put Vaseline on his blisters.  He got 5 or 6 big blisters, which she said is normal and when we use the Vaseline it will help keep it moist.

After we got out of the hospital we went to pick up his steroid and then we went to my grandparents and we went out for lunch at our favorite Mexican restaurant.  Brayden was so good at lunch and ate a whole banana and was full of smiles.

After we got home he took a 2.5 hour nap which he needed.  Thank you everyone for all the support and for thinking of Brayden and praying for him. 

We still have plenty of cookbooks for sale, please let me know if you would like one, they make great Christmas gifts :)


Brayden in his super hero cape waiting for Dr. Price


Brayden reading book with mommy


Brayden loved this toy! He was enjoying the play area at the hospital


As you can see his spots are super dark again, but they will start to scab and then fade

Here are a few of his blisters...poor little guy! He doesn't even complain with the blisters that he has

After his nap, yes he wanted 3 binky's, how can I say no?!

Happy Brayden full of smiles for mommy!

Brayden enjoying his bath after his nap and talking away to his ducky :)

Monday, November 14, 2011

Brayden turns 1...where did this year go?!

Brayden turned 1 on November 1st....can't believe how fast this past year went.  Don't know if it's because of all his surgeries or him just growing up to fast.  It has been an amazing year and Brayden has taught us a lot over the past year.  He is such a happy baby or should I say toddler and we have so much fun with him.

Brayden is on a break from his surgeries, which is nice.  He will have his next laser surgery on November 30th.  Then 6-8 weeks out he will have another one before his next round of tissue expander surgery in Chicago on Feb. 2nd. 

Here are some recent pictures of Brayden from Halloween and his birthday.  We still have cookbooks for sale, they make great Christmas presents :)


Brayden's 1st Birthday! He still has blue eyes and his hair is getting lighter and he still has no teeth


Brayden took pictures with his 2 buddies, Joshua & Zach for nevus calendar...they will be in the month of May and be the 3 Amigos :) This is not the picture we used though, you can buy the Nevus calendar for $10, contact me if you want the information

Mommy's Little Pumpkin ....at his 1st Pumpkin Patch

Yes, he is sitting inside a real pumpkin....turned out so cute!

Here is our little Lion for Halloween, ready to go Trick-Or-Treating

We went to the zoo with my parents for Brayden's birthday, he loved it!

Brayden's amazing birthday cake donated by Christine Leavitt...she did such a GREAT job! We loved it!!

Brayden eating his adorable smash cake that Christine made him, he loved it! So yummy!

Happy 1st Birthday Brayden Michael Phillipson!!