Fill #5 and the stress continues

This week has been another week of stress for us.  On Friday I get a letter from the Pediatric Infectious Disease doctor and they do not participate with any health plan.  Oh lovely, so know I have to call them this week and see what they can do about my bill and if they can reduce it at all. 

Then comes today, fill day.  Brayden's expanders were feeling super soft, so I was excited to do a fill tonight.  Erin and Brent came over tonight to help us and they even got Brayden 2 pairs for new shoes.  Puma's that light up and a pair of Tom's.  He's going to be one styling boy now! He is so lucky to have so many people that support him. 

Geoffrey started off with the right side, the good side and it went in great and Brayden didn't even cry.  He started pushing on the syringe and nothing would go in, oh great now what?! So he decided to try a new needle and still nothing would go in.  Then he tried another bag of saline maybe that was the reason.  Nope still nothing.  He had to poke Brayden about 3 or 4 times and Brayden did such a great job and watching a show on the ipad and didn't cry.  I am thinking that it could be a kink in the tubing or the port has flipped.  But I really don't think the port had flipped because when Geoffrey puts the needle in, he could feel the metal backing and it felt normal to him.

We emailed Dr. Bauer and he thinks the port is filled.  So tomorrow we will call Mim or Susan his nurses and talk to them about getting the port flipped back over.  Now I cross my fingers, we can do this and continue our fills.

The left side we got 75 cc's in which we are happy about.  We are not at 445 cc ont he left and 390 cc on the right since we didn't get anything in today. 

On a good note, surgery is 1 month away, now we just need some prayers and good luck our way so things turn out the way we want it to.