Back home again! And before & after pictures of stomach

Wednesday after they went to Dr. Bauer's office, Mom, Geoffrey & Brayden went back to the hotel for the night and relaxed.  That is the best thing for Brayden since he doesn't like to be moved.  He just laid in one spot all day and night.  He would point to his leg and say owie.  His leg bothers him since he has that expander in it. 

Mom & Geoffrey ordered Lou Malnatis pizza for dinner.  They were hoping Brayden would eat some too since pizza is one of his favorite foods, but he wouldn't even take a bit.  It will take him a few days before he wants to eat again.  Luckily he is drinking lots of milk, so that helps.  

That night Brayden slept 12 hours straight! What a brave boy! They didn't have to leave the hotel till noon.  So that morning they talked to Brayden's Grandma Kate, Auntie Megan and Great-Grandpa Hugh on skype.  Brayden was even playing peek-a-boo with Great-Grandpa and laughing.  Love how the simple things can make him laugh again. 

Brayden did great on the flight, he slept for about 3 hours and didn't fuss to much.  Last night he was happy to be home and went straight for his train table.  He wanted to stand but with his leg expander in, he kept shaking and Geoffrey had to be right beside him so Brayden wouldn't fall.  It will take awhile before Brayden can stand and walk again. Right now he is happy laying on the couch and watching cartoons and his favorite movies.

After he got home, I helped mom and Geoffrey do a dressing change.  Brayden hated that and said owie and cried some.  He also doesn't like his tubes being changed or his diaper.  We have to change his tubes every 4 hours and so far it's not draining that much.  So we might be able to pull them before the 10 days are up.  Which will be nice, that way no more dressing changes and also he will be able to take a bath again.

Last night he slept for 11 hours straight and the only time he cried was getting him up and moving him.  He still won't eat anything today.  But he did drink 2 sippy cups of milk. 

On the way to the hospital surgery on Tuesday morning for surgery

 

 

1st dressing change at Dr. Bauer's office, with his amazing nurses Mim & Susan

 

 Right expander is 1000 cc with 150 cc in right now and left expander is 750 cc with 120 cc to start

 

Left leg expander is 500 cc with 60 cc to start

 

My brave little boy! Someday this will all be a memory in our past and he won't remember any of this

Brayden's nevus under his stomach before

 

And now! Dr. Bauer did an amazing job cutting out the nevus, not much left up front now

 

Brayden smiling and of course he wanted some orange slices at Great-Grandma's....the only food he has ate since Tuesday .....Cheese!