Brayden's Journey

Sunday, April 21, 2013

Fill #8

Tonight we did fill #8.  Can't believe we are getting so close to being done with this round. Brayden's expanders are getting big and uncomfortable for him.  Last Sunday night, he tossed and turned and cried all night and Monday night he cried for 3 hours off and on.  I told Dr. Bauers office about this and the only thing they said we could give him is Tylenol, Motrin or benadryl.  On a good note we are just about 2 weeks away from surgery and so far we are doing great with our numbers.  Just wish he wasn't so uncomfortable at night.

This week he got to see his best friend, his nevus buddy....Josh! These boys haven't seen each other since February because they both had surgery and had to heal up.  They were both excited to see each other and it's so fun to watch them play together.


 


The past few weeks, Brayden has put up a good fight during the fill and tonight he did much better.  He cried but not as much and he also didn't move around as much.  But right after the fill, he is so uncomfortable and keeps touching his expanders and can't seem to get comfortable.  He has been crying for 2 hours now, none stop.  I have a feeling this will be another night of no sleep for all of us.  Hate seeing him this way, nothing I can do to make him feel better. 
 
 
We had another great fill with our numbers this week! And if we have another good one next week, we should be meeting our goals! We still have 2 fills left! We got 110 cc's in the right, 85 cc's in the left and 70 cc's in the leg expander.
 

 

Right expander at 900 cc's and our goal is 1000 cc's




 


 

Left expander at 680 cc's and our goal is 750 cc's

 

Leg exander at 490 cc's and our goal is 500 cc's
 
 

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