Marc and Brayden
Last night we removed his drainage tubes and that wasn't easy. He was screaming an crying the whole time. But once they were out, that meant no more dressing changes which he was happy about. That meant this morning he had his first bath after 10 long days.
He did say this morning that I have bubbles and they are under my skin mommy. The older he gets the more aware he is of everything going on now. Which is harder on all of us. When Geoffrey got out all the supplies for the fill tonight we asked him if he wanted to make his bubbles bigger and he started crying and saying no big bubbles :(
Tonight my mom and Brandon helped us with the fill and dad took Bentley upstairs so he didn't have to see or hear what was going on. Poor Brayden was crying so much and his leg was shaking so much. Breaks our hearts to see him so scared. He kept telling us that doctor said no more. One hard thing about having 3 expanders, means putting needle in him 3 times. And it didn't help that 2 of the ports where we stick the needle is on his front thigh, so he kept looking at Geoffrey when he was trying to get the needle in. Told him to stop looking and focus on us. Very proud of my brave boy and everything he has to go though.
We are off to a good start we got 60 cc's in his stomach and 40 cc's in his left back and 30 cc's in his left thigh.
Left back is at 115 cc which is a 500 cc expander and left thigh is at 70 cc with a 350 cc expander
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