4th fill

Tonight we did Brayden's 4th fill, we couldn't do his weekly fill on Sunday since Geoffrey was in Chicago for school.  On Sunday Brayden did point to his supplies and ask if we were doing that today.  I told him no, we had to wait till daddy got home from Chicago. Brayden is getting use to his bubbles, he even likes to show his friends.  He will lift up his shirt and tell them to look at his bubbles and he is all proud how big they are getting.  This is another reason I am so thankful we started this process when he was so young.

Brayden is very lucky to have so many nevus buddies and he always asks to go on a BIG airplane back to Arizona, to visit his nevus BFF Joshua.  Well last week I booked flights to go back to Arizona so he could reunite with his buddy.  He asked me when he sees Joshua if they would both have bubbles and I told him, No you will both be bubble free.  Then he asked me, Mom will you please not pop my bubbles.  So sweet how kids think.   

Brayden started getting worked up tonight when we got his supplies out but he did much better this week during the fill.  He asked how many bubbles we had to fill and I told him 3, so he was happy when we were down to 2 and then 1.  Now that he is learning his numbers, he understands more what is going on.

We had a good fill tonight, we got 50 cc's in the stomach and were at 310 cc's out of 500 for our goal.  35 cc's on the left back and were at 210 cc's out of 500 for our goal.  Left thigh we got 45 cc's and were at 200 cc's and 350 cc's is our goal.  We are doing very well with our fills and it's only our 4th one.  Praying this round continues to go as planned and no bumps in the road.  Dr. Bauer did put him on Bactrim for the reminder of the expanders. 

We took Brayden to the doctor today and he only has 1 tube in.  He has been complaining about his ears lately, so we will be taking him to an ENT doctor soon.  We will also be taking him to a pediatric dermatologist soon for a check up.  That is one bad thing about moving, finding good doctors that understand what is going on with your child.

Love my brave bubble boy!