Brayden's Journey

Friday, September 28, 2012

Benefits of staying at a great hospital

All I can say is wow....I am so impressed with this hospital.  First of all it's a 2 minute drive from my house and 2nd of all they have a children's unit.  He's at Banner Desert Hospital.  They have been nothing but nice to us and everyone loves learning about Brayden's nevus, since most of them have never heard of it before or seen in. 

Brayden is improving which is good.  Today he is talking more again, eating and playing again.  So why are we still here?  Well the expander is still red. The overall redness is going away but the middle and the left side are red still and kind of look like it is starting to bruise :(  boo!

This afternoon Dr. Workman came in and she said the expander looks a little worse then it did this morning, dang it :(  But she said they did run test on the fluid they pulled out of the port yesterday and it came back ok.  So that was good news.  She managed to pull 3 ml of fluid out around the port.  She is hoping that will help speed up the process to recovery.  I guess we have to take 1 day at a time and it looks like we better get comfortable here, because we are not leaving anytime soon. 

Here's some recent pictures of his expanders

 




 

 
After Dr. Workman pulled some fluid off the port.  They brought Brayden to a room filled with brand new toys and Brayden got to pick out anything he wanted! So of course he went with the 14 piece dinosaur set.  After that, they were so nice and opened up the playroom, just for Brayden! He played for 45 minutes and so excited to be free for awhile.  He was a little off balance, so Geoffrey kept 2 steps behind him in case he would fall.
 
Shortly after, a nurse came in and brought me so information about Southwest airlines and how they have a medical grant for flying.  She told me it wouldn't hurt to look into it and she gave me some prices for flying Allegiant air.  I thought wow, that is so nice of her to think of us.  And for Brayden they gave him a bag full of goodies and a mokey build-a-bear! And his favorite, stickers! He was so happy after that.
 
Brayden playing with cars in the playroom

Say Cheese Brayden!!

 


Loves cars!

He decided the monkey would love to wear some stickers
 
Tonight, Brayden got to face time his nevus buddy Joshua! How cool is that?! They have a good time talking to each other and Brayden was even laughing and waving bye bye! Josh and his sister Katie, even sang Brayden a few songs.  So fun to see Brayden interact with his friends and happy they live now a days with the technology that we have!
 
Now lets just hope and pray tonight is a better night and tomorrow, his expander shows more improvements
 


 

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