Brayden's Journey

Sunday, September 23, 2012

Sunday funday...fill #3 done ...easy does it

Wednesday morning, Geoffrey woke up Brayden to take him to get his stitches out.  When Geoffrey got him up, Brayden threw the biggest tantrum once Geoffrey took off Brayden pj's.  So needless to say, Brayden won this battle and he wore his pj bottoms with his t-shirt and shoes. When they arrive at  Dr. Price's office, his amazing dermatologist. Brayden had to get out of his pj bottoms, so of course that led to another melt down.  Geoffrey took his bottoms and put his arms throw the leg holes to make him happy.  Oh the little things in life that makes toddlers happy.

Dr. Price took his stitches out where he had his advancement done.  Now we are hoping that it starts to heal, so he can sit again.  He still hasn't sat on his butt since surgery.  Each week, he is healing and I know soon he will be able to sit again. 

Taking out the stitches was not fun, for Brayden or daddy.  Brayden couldn't be put under because he had his expanders in.  So he was hanging on to daddy and screaming in his ears.  But luckily Dr. Price and her assistant Kelly, worked quickly and Brayden was done and happy as can be. 

Recent picture of Brayden's butt
 

Tonight, Geoffrey's co-worker Victoria offered to come over to help us with the fill.  She has been very supportive of Brayden and even ran in the PF Chang marathon with me last year, in honor of him.  We are happy Brayden has so many people that support him, especially since we have no family here during these stressful times. 

Can't believe we are already 3 weeks into the fills, seems like once you get the 1st fill under your belt, it becomes a Sunday routine. Normally once we put the lidocine cream on we have him sit in his high chair for a hour.  Well since he won't sit, that makes it harder.  Now he plays and we put on Curious George to help pass the time. 

This week, Geoffrey didn't get in as much as we would have liked.  But you never want to over fill, then that could lead to complications later on down the road.  We got 45 cc's in the right, now at 315 cc's and 45 cc's in the left, not at 320 cc's.  Luckily they are both feeling up the same, this way Brayden won't have such uneven bubbles like last round. 

One problem I am having, what should he be for Halloween this year?! It's hard to pick something because I don't know how big his expanders will be then and also, will he actually wear something on his head.  I also have to keep him on lock down a few week before surgery because we don't want him getting sick.  I know we can't wait for the day, when I don't have to worry about keeping Brayden away from germs and he can be a "normal" kid a get sick and we won't freak out when it happens. 

This bubbles are slowly getting bigger
 


Left expander at 320 cc's
 

 
 Right expander at 315 cc's
 






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