Staph infection for Brayden

Today was a better day for Brayden, he is talking more and more and becoming his happy self again.  This morning when Dr. Workman came in she looked at his expander and she said that his expander overall looks better then it did the day before.  So that is great news! The middle area and the left area and still purple/dark red.  We need to continue to watch it because that area has been stressed and should recover as things improve.

Some of the skin color is coming back and the red it less then it has been

 

View from Brayden's hospital room.....when airplanes fly by, Brayden points and says airplanes

 

 

After Dr. Workman came this afternoon, another doctor came in to talk about Brayden's results from the fluid they pulled 2 days ago.  It came back positive for staph infection.  a type of bacteria. These bacteria can live harmlessly on many skin surfaces. But when the skin is punctured or broken for any reason, staph bacteria can enter the wound and cause an infection. The doctor thinks he could have gotten this from our weekly fills, since every week we have been opening the port with the needle.  But then again, it is hard to tell how he got it.  Staph infection can be scary, so we are happy they caught it and now they can get Brayden on the right antibiotic to fight this out of his body. 

 

When are we breaking out of this place, hmmm not anytime soon.  The doctor now, knows what type of iv antibiotic to put Brayden on to treat this.  Then they have to make sure it's going the job.  Once they get that all worked out, they will put him on an oral antibiotic for the rest of the time these expanders are in.  They don't want to risk anything else happening to Brayden.  I do feel better now that they know what he has, so they can treat it and Brayden can start to get better. 

 

Today they had a children's play, Charlotte Web's.  The moment the nurse unhooked Brayden, his face lite up and he was so excited to leave this room.  He was laughing at the kids as he watched the play, made me feel so much better seeing him smile and laugh again.  After the play, I decided we would go outside for a bit to get some fresh air.  I put Brayden in a red wagon they have here and oh my, he loved it! He kept saying choo choo, choo choo! It was great to see him happy again! Melts my heart. 

 

Now I just need him to fight this staph infection, so we can go home.  Tomorrow the doctors will be around to see how he is doing and I guess we will just take it one day at a time right now.  Thank you everyone for all your support, means the world to us!