Brayden's Journey

Monday, March 14, 2011

MRI Results are back! And Nevus gathering

Dr. Price who ordered Brayden's MRI got his results back and it came back completely normal! What a relief, we were so happy to hear the good news.  We didn't want anything else wrong with Brayden.  But we still need to send the MRI results to Dr. Barkovich in San Fransisco to get a second opinion...he is the top doctor and knows what to look at when he see's the MRI.  So still keep Brayden in your prayers that his results are normal.

Over the weekend, Brayden did have a high temperature but it went down on Saturday finally.  Today he goes for his 4 month check up, so the doctor will look him over to make sure he is healthy.  He will also get his shots, poor baby...hates those. So glad daddy is taking him to that and not mommy, I hate to see him cry!

Yesterday we went to a Nevus gathering in Phoenix.  It was so nice to talk to other parents and adults that have nevus.  We leaned a lot and even Dr. Price who is a dermatologist pediatrician at the Phoenix Children's hospital attended the event. This is the dermatologist that Brayden goes to. Dr. Price was there to talk about a newish laser technique that they have been doing for 2 years now. So we learned a lot about that and we can start that when Brayden turns 6 months. We are thinking of doing the laser on all of his satellite spots, which are the small nevus on his legs, arms, etc.

Now we are thinking about going to Chicago to have Brayden's tissue expanders done there with the top Dr. in the world....Dr. Bauer. I emailed Dr. Bauer this morning for a consultation about Brayden and sent him pictures of him. So I will be waiting to hear back from him. So if everything is good, we would like to go to Chicago in May for his 1st surgery. If we do that, we will have to figure out where to stay, flight and etc....going out for state for surgery will add up quickly and especially if we have to travel there again in July to get the expanders out since you have to leave them in for 12 weeks. Then let the skin heal for 2-3 months....then go back in Nov or Dec and then Feb or March again.

I think for the 1st trip, I will be going with Brayden alone that way, we don't have to buy 2 plane tickets and both of us taking time off of work.  Since Chicago is close to Iowa, my family will come to support Brayden & I.

This is the latest with Brayden....will keep all of you updated once I know more

On a good note, he is holding his head up good now, so this week, he will be trying rice cereal for the first time :)

He is growing so fast!

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