Once we got on the flight, Brayden was great and he slept for 2 hours, the rest of the flight he played with his new toy and talked away to people sitting next to him. He also played with the ipad for awhile. Which I love having that now, so many things for Brayden .
After we landed we called ahead to our favorite pizza place Lou Manalti's and they said they were closing, but they would go ahead ad stay open to make our pizza. Wow, so awesome they did that for us! We finally got back to the hotel at 11 pm, had to eat and give Brayden a bath and Grandpa and Grandma Vauble got him some news toys, so he was wide away playing until 1 am. We had to wake up at 5 am, so not much sleep for any of us last night.
I can't believe it's been over a year now that we start this nevus journey and I am so happy that we decided to remove Brayden's nevus, so far the results are amazing.
Dr. Bauer came in before surgery to talk to us about the game plan. 2 weeks ago, I emailed his pictures and he told me Brayden would be having 3 expanders in, 1 in his back and 1 in each thigh. When he looked at Brayden in person today, he said no change of plans, he's not going to put expanders in his thighs because the right thigh didn't need it, we would do an advancement or a butt lift to that side today. And the left side his lef isn't big enough. He told me he was going to put 2 expanders in his back again and he thinks with these results we get over the next 11 weeks, he wont need anymore expanders. That the next surgery would be an advancement and cleaning everything up. Well I really don't want to get y hopes up, anything can happen these next 11 weeks. We will take each day as it comes to us and things will work out the way it's meant to be. I trust Dr. Bauer and I know he is the best. So someday Brayden will be nevus free, will it be 6 months from now, a year from now, who knows but we are that much closer to making it possible.
When Brayden went back for his 5th surgery today, it was hard to see him go, but I knew he was in the best hands.
Brayden also got tubes put in his ears today, his ENT doctor came out to talk to me after she placed them in. She said everything went well and she is happy we put the tubes in, because his left ear drum was not looking good and she said he would always get ear infections on that side if we didn't get these tubes in. So I am happy we finally got them in, one less stress for us.
Next up it was Dr.Bauer's turn for surgery, it took him 1.5 hours and he said everything went great. Brayden did have fluid under his skin where his old expanders were and Dr. Bauer said it was easy for him in surgery to lift that skin up. He said everything went well and he was happy with the advancement he did on Brayden's right thigh. I can't wait to see that tomorrow morning when we go see Mim at Dr.Bauer's office for the 1st dressing change.
When I went to recovery, normally this is the hardest part, but this time, it wasn't Brayden was fast asleep. I waited in recovery for 1.5 hours with him and he never woke up. So they took us up to his room and he continued to sleep until 3. Once he finally woke up, he was crying pretty hard and the only thing he wanted was me and his 3 pacifiers. After a few hours, he finally wanted some apple juice and a banana and when I showed him gummy worms, he got so excited. So he ate a few of those. So I was happy he was eating so soon after surgery.
We even snuggled and watched a movie together this afternoon. He is so uncomfortable when the nurses come in and move him and he hates to take medicine.
We will stay the night in the hospital and tomorrow morning we will go to Dr. Bauer's office for his 1st dressing change before we start our 7 hour drive to Iowa.
I want to thank all of you for your love and support today, means the world to me that Brayden has so many people that love him and pray for him. He is such a tough little super hero and he is so brave!
We did sell a few cookbooks lately and we still have over 100 left, they would make great birthday, Christmas gifts for a friend or loved one :) Thank you to everyone that has already bought one and supported Brayden.
Well hoping we have a good night and tomorrow my little guy bounces back and starts to talk more and play. I know each day will get better and today is the worst, for him and for mommy and also daddy who is so far away. We did skype him today, so that was nice, but poor Brayden was crying the whole time :(
Now, I just ordered Brayden's favorite food....pizza and guess what he falls asleep, he does need his sleep, so if he's hungry he will wake up.
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