2nd fill done

Earlier this week we didn't know if we would be doing his second fill today.  Not because he is sick, which does happen.  We were told by his nurses Mim and Susan that there is a nationwide shortage of saline.  We were waiting for the arrival of saline all week.  Friday I began calling around to see if we could get some. Mim told me that Dr. Bauer was stressing because last month he put in expanders on 30 different patients. So Brayden isn't the only one needing saline right now for the weekly fills.

Finally at 5:00 Friday my local hospital came through with 2 bags of saline for us and Stephanie Burmeister an amazing nevus mom is mailing me 10 bags of saline this week.  So thankful for other nevus moms looking out for us.  Now we are all set with saline and one less stress. 

Soon as Brayden seen the supplies he asked, "Are those for me mom?" He knows what is going on that's for sure.  He cried the whole time while we were doing the fill again this week.  When we were done with the fill he asked if his bubbles are really big now and he also asked if his buddy Joshua also had big bubbles like him.  I am so thankful he knows he's not alone having bubbles.  Having other nevus families as support these past 3 years have been amazing. 

When we told him it was time for the fill, poor Brayden :(

 

Tonight we got 45 cc's in the stomach and now at 215 cc's out of 500 for our goal.  Which we are very excited about since this is our 2nd fill

 

In the left back we got 30 cc's and now at 145 cc's out of 500 for our goal. In the left thigh we got 40 cc's and now at 110 cc's and 350 is our goal