Brayden's Journey

Sunday, March 3, 2013

First fill done for round #4

Tonight we did our first fill for round #4.  I have been waiting all week to do the fill, just wanted to make sure everything worked and we had no problems with the expander or the port.  Erin and Brent came over to help us with the fill.  Having an extra person is so nice, I hold Brayden and Geoffrey does the fill and Erin helped out with Geoffrey. 

Brayden was not happy as soon as he seen the medical supplies come out.  He is getting older now and knows that is coming up next.  We tried distracting him with fruit snacks, his pacifier, ipad and he didn't want anything.  Geoffrey was just cleaning the area before he stuck the needle in and Brayden was screaming and crying owie.  So I knew he was scared, which is hard to see your kid like that.  I think the 1st expander he filled Brayden could feel the needle go in because as soon as it went in Brayden screamed and stood up. The other 2 were much easier to get in and he didn't move when the needle went in.

We were told by Dr. Bauer to take it slow, so we did.  We got 30 cc's in the leg and 40 cc's in each back expander. We just want to take this round with caution and pray nothing happens.  Soon as Brayden was done, he said "All done." He had the biggest smile on his face.  So glad, he bounces back so fast after being so scared.

Right after fill, so happy and enjoying his sucker with his 3 pacifiers!
 

 Now it's time for some yummy ice cream and sprinkles, everything he went through tonight, he deserved it!
 Right expander we got 40 cc's in now at 190 cc's and left expander we got 40 cc's now at 160 cc's
 

 Geoffrey had to mark that port since it was so had to feel and see, so he drew at circle around it
 

 Leg expander we got 30 cc's and now at 90 cc's
 

 His stomach is healing up nicely, as it's healing it has more nevus left then I thought at first.  I am sure Dr. Bauer will touch that up in May
On a lighter note, the other day Geoffrey showed Brayden a picture of his expanders last round and he said, "Bubbles Daddy!  Pop, pop."  Too funny how he calls them bubbles and he probably thinks he can pop these bubbles just like he does in the bath. 

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