Brayden's Journey

Sunday, March 31, 2013

Happy Easter! 5 fills done & 5 to go!!

Happy Easter everyone! I know Brayden sure enjoyed his Easter, he had a great time dying eggs and also hunting for them today.  We are now to our half way mark, what an exciting feeling! 5 fills done and 5 to go! Hope and pray that the next 5 weeks go as smoothly for us.  This past week, we did notice his leg expander was pinkish color.  I didn't know if this was normal or not.  So I sent a picture over to Dr. Bauer's office and they said the leg expander can look more vascular ( pink/red) because of the location and that we need to keep it well moisturized.  So that was good to hear that it is normal.

Tonight we did our fill at my grandparents since we were with them celebrating Easter.  It was a very stressful fill at first.  Soon as he seen Geoffrey bring out the supplies, he said "shoo daddy, owie." Breaks my heart that he knows what is coming next. Brayden was crying so much and moving around.  I had such a hard time holding him down and I have to hold him, while Geoffrey sticks him with the needle and if Brayden moves he will get stuck in the wrong spot.  It took over 10 minutes just to get the 1st needle in because he was so upset and scared.  Grandpa helped me hold him down and finally the needle went in and we continued on with the fill.  He did calm down some, but I think it was just because he was getting exhausted and sick of fighting us.  Other then Brayden moving around so much, we had a good fill and got great numbers.

Here is happy boy dying Easter eggs
Dying eggs on Friday night, cheese!

 

Getting all the supplies ready for tonight's fills, a lot of supplies are needed each week

 

Since we are at our half way, I have good news....we went pass our "goal" amount for the half way mark! So exciting! Now if we keep up the good work and no problems, we will be meeting our goals for surgery.  The Right expander is now at 590 cc's and our goal is 1000 cc's.  Left expander is now at 440 cc's an our goal is 750 cc's and the leg expander is at 295 cc's and our goal is 500 cc's. Look at how great and also big those bubbles are getting!

 

Right expander we got 90 cc's and now at 590 cc's

 

Left expander we got 75 cc's and now at 440 cc's

 

Leg expander we got 60 cc's and now at 295 cc's

 

 
 
 

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