Brayden's Journey

Sunday, June 22, 2014

Fill #9

Tonight was fill #9.  So happy we are nearing the end of this round.  Brayden is having a harder time with the fills as the weeks go on.  Now he came up with the idea to get out of during the fill, he has to go potty.  And what do you know, he sits on the potty and never goes.  He was shaking and screaming so much tonight.  So hard to see him like this.  I just pray this is our last round of expanders for him.  So thankful we started when he was 7 months old.

Brayden needs to take it easy these last few weeks.  His problem area on the scar tissue is getting worse.  It makes me nervous the way it is looking.  But Dr. Bauer did tell us this week, to not worry since it's the scar tissue and to keep it really moist with aquaphor.  Easier said then done . 

Tonight we got 40 cc's in the stomach expander and now at 495 cc's.  So close to our goal which is 500 cc's.  We got 30 cc's in the back and now at 355 cc's and our goal is 500 cc's.  On the left thigh we got 30 cc's and at 380 cc's and our goal was 350 cc's. 

I have noticed the more these expanders weigh, the more it is cause Brayden's feet to turn in.  I know once this added weight from the expanders is out, his feet will go back to normal.  Just amazing the bigger these bubbles get, Brayden just runs around like he doesn't even have them in. 

 The scar tissue getting bigger


No comments:

Post a Comment