Fill #10

This week we have been noticing his hole in the scar tissue is getting deeper and bigger.  We thought it would be  good idea to double check with Dr. Bauer before we did our fill tonight.  We were concerned about the back expander and if that hole keeps opening up, it could affect that expander.  The amazing Dr. Bauer responded to us right away on a Sunday and he said I would probably hold on further expansion of the back.  He also says that even though it looks like it will break through, he doesn't think that is going to happen because there is a lot of tissue between the wound and expander. 

So we were right on not filling that back expander.  I would rather play it safe then be sorry and we are 11 days away now from surgery.  Tonight when we put the lidocaine on Brayden started screaming and said he wanted to go up stairs to his room by himself and go to bed.  Poor guy is trying everything to get out of doing these fills.  Luckily for him, we only had to do 2 tonight.  As we were doing his fill he said, "Daddy don't fill too much your going to pop my bubble."

We just pray his hole in the scar tissue doesn't create any problems before surgery.  Next week Dr. Bauer will be at the Nevus conference in Texas.  Nevus Outreach has a conference every other year during the 4th of July.  We are hoping to make it next time, that way Brayden will be older and he will get more out of it and meeting lots of people just like him.  I know we are truly greatful for all the nevus friends we already have in our lives.  Having support from people that can relate, means the world to us. 

Tonight we got 40 cc's in the stomach and now at 535 cc's and our goal was 500.  And out leg expander we got 30 cc's and now at 410 cc's and our goal was 350 cc's.  We are really happy we are past our goal on 2 expanders.  The back is at 355 cc's and our goal was 500.  I think since we have stretched that area so much in the past, that is all it can handle. 

We will try to do 1 more fill next Sunday, as long as this week goes as planned and creates no more problems for Brayden.

Hole is getting larger since last week and that's why we couldn't fill the back expander tonight