Brayden's Journey

Saturday, August 6, 2011

Back home again

On Sunday we left Iowa and we drove back to Chicago.  Brayden was so good on the 6 1/2 hr drive, he slept almost the whole way.  When we arrive back in Chicago we went out for pizza at Gino's East.  Which was very good. 

Bright and early Monday morning we were off to  Dr. Bauer's office.  Before we left, we put lidocaine on Brayden's ports and wrapped him in saran wrap  That way when we stuck him with the needle, he wouldn't feel a thing.  Once we arrived, Mim who is Brayden's nurse layed out all of the supplies that we would need in order to do his 1st fill.  Grandma played with Brayden, while I took notes how to do everything.  Mim filled his right side with 30 cc's of saline.  Then she had me do the left side which I got 40 cc's in.  We didn't want to put too much in since it was only 2 weeks out from surgery and also on the right side some of the skin was splitting a little where the stiches are.  So Mim told us to keep an eye on that. 

Doing the fill looked easy and even when I poked Brayden with the needle he didn't even move.  Which I was happy about that he wasn't in any pain. 


Here's a picture of my 2 "bubbles" The right has 140 ccs and the left has 110 ccs

Every week my expanders will grow when we do the fills. 


Brayden was such a good boy on the flight for mommy.  And Geoffrey was so happy to see us, 15 days away was a long time.  All Brayden wanted to do when he got home was crawl around and play with his toys.  He has till Monday till he came move around again.  Then he will be a happy little boy again :)

This week, Brayden got sick with a swollen throat and had a high tempature of 103.2.  Geoffrey took him to the dr and they put him on antibotic.  That seemed to help and by Thursday night, he was wanting to eat again and talking away.  If Brayden was still sick this weekend, we would have to skip the fill on Sunday.  So were are happy he is better and tomorrow we will be doing our fist fill from home, wish us luck ;)

1 comment:

  1. Only now I see what will happen in the future. The expanders are put under the normal skin. Silly but I thought the expanders would be in his bum and I had great doubts about that. You're all so very brave! Just great that your parents were with you the first time. Good luck with the fills. Happy to know Brayden is feeling better without fever.
    We wish you luck today and I am sure you will succeed in the fill. Lots of love, Tineke and Sylvia

    ReplyDelete