When will we see the light at the end of the tunnel? Brayden's back keeps looking worse

Brayden has been having a rough week, everyday his back is looking worse.  Also last night we took his drainage tubes out.  It was probably one of the worse things we have every experienced as parents.  Brayden was crying to much, shaking, sweat dripping down because he was so scared.  He also pooped twice while we were trying to take them out because he was scared.  I just hated seeing him that way and I wish I could take his place in a heart beat.

On a good note, after the tubes came out, he was his same happy little self again. He's still not walking yet or wanting to move around.  Which is good. We don't want him moving around too much.  He hasn't been sleeping good, he cries off and on at night because he is so uncomfortable.  But tonight he had his first bath since surgery and I'm sure that made him feel a little better.

Brayden was suppose to get his stitches out next week, but since it's not healing correctly, we pushed it back till June 4th.  He will also be getting around round of laser done since he will already be put under. 

We have been in contact with Dr. Bauer everyday and his nurses and sending them pictures. They say all we can do is stay on top of his dressing changes and we pray it starts looking better soon