Brayden's Journey

Sunday, April 1, 2012

8th fill done...3 more fills to go until removal and we met our goal for the right side!!

Tonight we did fill #8! We are happy that he is doing great with his expanders and every week we have been able to do a fill.  The fill went great and Katie came over again tonight to help us with the fill.  He moved a little when the needle went in the right side but then he was a tough little boy and sat still while Geoffrey did the fill.  We got 65 cc in the right side and now we met our goal which was 750 cc...we are now at 760 cc! The left side Brayden didn't feel a thing and we did better on that side this week then the right, which we were happy about.  We got 70 cc on the left, so now we are at 485 cc.  I know we won't hit our goal on the left side, but we will be happy if we reach 600 on that side. 

This past week Brayden went to the ENT doctor and funny enough the ENT doctor that we happen to just pick, he studied under Dr. Bauer's son, Erik, who is a ENT doctor in Atlanta.  Guess good doctors run in the family :)  The doctor said since Brayden has only had 3 ear infections within the past few months, that the rule of thumb is 6 ear infections within a year.  So he said he would wait for Brayden to get them.  I then emailed Dr. Bauer and he said yes, that is true for for the average kids without expanders and he said that the number of infections may not be as important factor there are recurrent infections when the patient is going to have tissue expanders. Which we know can be at risk because of the ear infection. And he doesn't want to risk the expanders, so we have agreed to get tubes in his ears when he has his expanders taken out April 23rd. At least Brayden will already be under and they can just have a ENT doctor come in and do it all at once.

This was last week, right after his fill...he was jumping on Geoffrey trying to beat him up.  Amazing how tough my super hero is!



Right at 760 cc & left at 485 cc


 Brayden has been such a good boy....he deserves a surprise gift after his fill tonight...a 4-in-1 trike...he loves it! I like it because we can take him for a walk and push him in it and it has the shade, perfect for Arizona ;)



And he's ready...to take it for a spin outside with mom


He had so much fun on his trike...he cried and cried when we came inside


And when we came inside, he wouldn't get out...he wanted to sit and watch TV in his new trike.....guess he likes it, ha!

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