Brayden's Journey

Tuesday, September 13, 2011

Brayden means brave...and yes, he is Brave!

Today I remembered what the meaning of Brayden means, it is brave and it had me thinking how his name fits him perfectly.  That our Brayden is indeed brave, he is so strong and I can't believe when I picked them up from the airport on Sunday, he acted like nothing happened and that he didn't just have surgery 2 days prior.  Just amazes me how strong this little boy is and how he hardly complains. 

Yesterday we had a good day, I finally got the news I have been wanting to hear....Brayden's laser is being covered by insurance!!! We are so happy that they finally approved it.  Now that means that he can continue on with his laser treatments on all his satelite spots.  We were waiting for Phoenix Children's Hospital to get the new laser and now they got it, so we think Brayden will have his 2nd laser treatment next month sometime.  He will need 4-5 rounds of laser  .

We are enjoying our time with Kate in town, tomorrow we are going to Sedona for the day and then we will stay in Flagstaff.  Thursday morning we will be going to the Grand Canyon.  Which will be good for Brayden because this way, he will be in his car seat and the stroller, that way he doesn't want to crawl every where.  Brayden has to keep it easy for 3 weeks.  He will get his tubes taken out on Friday, which will be good.  Then he can finally have a bath again!

We booked Brayden's 2nd round of surgery with Dr. Bauer in Chicago yesterday as well.  Brayden will be going for surgery on Feb 2nd (which is Kate's birthday) to get two expanders put in the middle of his back and he will get them taken out on April 23rd. 


Brayden with his bubbles, before the infection started

 Before when he was only 2 months old                    
After his 1st round of tissue expanders


 Right side, those are his drainage tubes he has to keep in for 10 days

 Left side



1 comment:

  1. I am so happy for you that the first round went well. Fantastic news that the insurance company will pay for the laser treatment! Have fun with your granny Kate, Brayden! Love you! Sylvia

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