Brayden's Journey

Sunday, September 9, 2012

Fill #1 for round 3 done!

Last night we pulled Brayden's last tube out.  So today I started the bath water and I told him bath time and he came running to the bath all excited and thew all his bath toys in.  Brayden loves his bath and this would be his 1st bath since surgery.  As soon as I put him in the bath, he started crying and wanted out.  He still doesn't want to sit on his butt.  So I had to get him out right away and sponge bath him while he was standing.  I am hoping he will start to heal soon so he can sit down.

Tonight we did his first fill for round #3.  Hard to believe we are already on round 3, but what a good feeling it is to have 2 rounds already behind us.  Tonight Erin came over to help us with the fill.  It is always so nice to have a extra set of hands when were doing the fill and we are lucky she could come over. 

We decided the best way to the do the fill would be me holding him.  That way he can't move when were doing the fill.  We got the ipad out and a sucker and we were ready to go.  But as soon as Geoffrey took his diaper off, Brayden knew something was up and he started crying and wanted his diaper back on. The older Brayden gets, the harder this is on him, he's so more aware of everything and he knows were about to do the fill. 

Luckily he didn't feel the needle, he just cried off and on while he watched Lion King.  We had a good fill this week. We started this round off with great numbers, Dr. Bauer put in 130 cc's in each expander and the expanders are 750 cc's.  Our goal is to get around 750 cc's in each expander. We got 75 cc's on the right now at 205 cc's and 80 cc's on the left now at 210 cc's. 

Now we just need Brayden's butt to heal and that we have a good round with no complications.

Brayden reading his get well card from Syliva & Tineke, that are so thoughtful to always think of him all the way from Holland

Loves reading cards

Expanders after the 1st fill
 


Right expander at 205 cc's
 


Left expander at 210 cc's
 

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