Brayden's Journey

Friday, September 28, 2012

Wish this turtle speed of healing would speed up for my brave heart

Brayden is slowly doing better, but like I said slowly.  We have been in the hospital since Wednesday and we could be in here for a few more days. 

Dr. Workman, came in yesterday and she was able to get 5 ml of fluid out around the port.  Dr. Bauer was happy about this because that will help with the healing process. 

Yesterday he did eat 3 slices of pizza and some oreos.  Which is great! And he even wanted out of the bed.  He laid on daddy for awhile. 

 
Last night, Geoffrey went home to get some sleep, so I stayed with him.  He was wide awake till about 1 am and he got up 4 times last night, crying for awhile.  So needless to say, I didn't get much sleep, with his crying and the nurse coming in and out all night long. 
 
This morning I met Dr. Workman for the 1st time.  She was the doctor that seen Brayden in the ER.  I asked her if she has ever heard of nevus and she said yes, I was so surprised because most doctors have never seen or heard of this before.  And this is such a small world because she interviewed with Dr. Bauer and was going to work under him?! She said he is such an amazing talented doctor and he is so gifted in what he does.  She decided to go a different route and she does hand surgery and cleft pallet.  She has been phoning Dr. Bauer and they have been talking back and forth.  This makes me feel so much better that Brayden is in good hands here with a doctor that can relate to him and also one that knows Dr. Bauer!
 
When she checked Brayden this morning, she noticed more fluid around the port.  She said she will be in this afternoon to get some of that fluid out 
 
I emailed Dr. Bauer and I asked him, should we pack our bags for Chicago?! And he responded and said. you are in great hands with Dr. Workman and she is telling me that he looks better from Tuesday and he is improving each day.  He said it takes awhile for the body to get rid of this infection and he feels like Brayden will be just fine.  He wants to keep Brayden in the hospital until he is better and the redness in the expander is gone.  After he gets out, he will keep him on an antibiotic until our surgery date, Nov. 15th. 
 
So that is good to hear, that they think Brayden is improving and we just have to take each day at a time.  As of right now, we are hanging tight here and not going home anytime soon. 
 
I did notice the hospital has a play area and if Brayden is up for it, he will be playing later on today.  All night, he was asking for his shoes, he wants his shoes so he can go home.  Poor baby is ready to split this joint.
 
Brayden was a very spoiled little boy yesterday, so lucky to have sooooo many people support him. Means a lot to us!
 
Geoffrey's sweet co-workers Jessica & Karen sent this to him

 

 
Cars from Grandma & Grandpa Vauble

 


Dinosaur from his buddy Hannah!

 


Teddy Bear and balloon from Makenna, Holli & Brandon

 

 
Today Brayden also had 2 visitors, Destiny came buy and brought him a book and he loved it! He was pointing and talking to her about the book.  Also Stephanie, came by and brought him a smoothie from Jamaba Juice, what a nice surprise! He loves smoothies and this will feel good on his throat.  Oh not sure if I mentioned it or not, but he did test positive from strep. 
 
Here's an update of his expander, still red but slowly getting better


 



 

 

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